PLENARY SESSION

TUESDAY, AUGUST 19, 2025

11:30 am Introduction on GINA and the Current Landscape
Jessica Lynn RobertsJessica Lynn Roberts, JD, Professor of Law, Artificial Intelligence, Machine Learning and Data Science, Emory Law


11:40 am PLENARY PANEL DISCUSSION: Genetic Discrimination: Impact of Genetic Test Results on Access to Life, Long-Term Care, and Disability Insurance

PANEL MODERATOR:
Laura GellerLaura Geller, National Investigative Producer, CBS
Genetic testing has become progressively more important in predicting disease risk and has facilitated the development of targeted therapies. Passed in 2008, the Genetic Information Nondiscrimination Act (GINA) prohibits genetic discrimination by health plans and employers. However, this federal law does not apply to life, long-term care, or disability insurers so it is legal to use genetic test results in these coverage or premium decisions.

PANELISTS:
Jennifer R. LeibJennifer R. Leib, Founder, Innovation Policy Solutions LLC
John William MusickJohn William Musick, Patient Advocate, End the Legacy
Lisa SchlagerLisa Schlager, Vice President, Public Policy, FORCE Facing Our Risk of Cancer Empowered


12:15 pm Keynote Panel Introduction (Opportunity Available)

12:20 pm PLENARY PANEL DISCUSSION: From AI to LDTs: Top Lab Advocacy Topics

PANEL MODERATOR:
Susan Van MeterSusan Van Meter, President, American Clinical Laboratory Association


  • Reimbursement issues to be covered will include improving coding policy for new and existing codes, bringing rationality to Medicare payment through PAMA reform, and cutting through aggressive payer prior-authorization practices and other barriers to care and payment
  • Regulatory issues will delve into the latest for LDTs from the administration, courts, and Congress​

PANELISTS:
Jonathan R. GenzenJonathan R. Genzen, PhD, CMO, ARUP Labs
Lauren R. SilvisLauren R. Silvis, PhD, Senior Vice President, External Affairs, Tempus, Inc.
Rachel StaufferRachel Stauffer, Principal, McDermottPlus Consulting LLC


1:05 pm Session Break

1:10 pm Luncheon Presentation (Sponsorship Opportunity Available) or Enjoy Lunch on Your Own